iDASH and pSCANNER Data Sharing Symposium

Date: September 30-October 2
Time: 8AM-5PM; 8AM-5PM; 8AM-12PM
Location: Atkinson Hall, UCSD Campus, La Jolla, California.
Directions: Driving and walking directions to the meeting from nearby hotels can be found here.

 

 

This event is supported by NIH grant, iDASH, PCORI funded pSCANNER, and the Department of Biomedical Informatics at UCSD.

[[{"type":"media","view_mode":"media_large","fid":"1642","attributes":{"alt":"","class":"media-image image-style-large","height":"200","style":"height: 35px; width: 84px;","width":"480"}}]]        [[{"type":"media","view_mode":"media_large","fid":"1643","attributes":{"alt":"","class":"media-image image-style-large","height":"158","style":"height: 40px; width: 122px;","width":"480"}}]]         [[{"type":"media","view_mode":"media_large","fid":"1645","attributes":{"alt":"","class":"media-image image-style-large","height":"204","style":"width: 66px; height: 65px;","width":"206"}}]]

Wednesday, September 30 (Day 1)

8:30 AM
Breakfast and Registration
 
 
9:00 AM
Welcome and Introduction to pSCANNER Phase I Accomplishments
Lucila Ohno-Machado, MD, PhD
University of California San Diego

View Video
View PDF

9:20 AM

Keynote: PCOR, PCORI, PCORnet: Oh My!
Maryan Zirkle, MD, MS, MA
Patient-Centered Outcomes Research Institute

View Video
View PDF
10:00 AM
Phase I Infrastructure and Analysis-ready Data
Daniella Meeker, PhD
University of Southern California

View Video
View PDF

10:15 AM

Break

 
10:30 AM
An update on the integration of distributed analytics of pScanner and the POPMedNet Client
Michael Matheny, MD, MPH
Vanderbilt University
View Video
View PDF
10:50 AM
Demonstration of the Portal
Daniella Meeker, PhD

University of Southern California

View Video
11:00 AM Panel: Natural Language Processing
Scott DuVall, PhD (Department of Veterans Affairs, University of Utah)
Chun-Nan Hsu, PhD (UCSD)
Michael Matheny, MD, MPH (Vanderbilt)

Hua Xu, PhD (UT Houston)

View Video
View PDF

11:30 AM
Joint Talk: Phase II New Data Partners
Anish Mahajan, MD, MS, MPH (Los Angeles County Department of Health Services)
Lorrie Sheets (San Mateo Health System)
Spencer SooHoo, PhD (Cedars-Sinai Medical Center)
Adam Wilcox, PhD (Intermountain Healthcare)
View Video
View PDF
Sheets
Mahajan
SooHoo
Wilcox
12:00 PM
Lunch and Breakout Meetings
 
1:30 PM
CDRN Learnings and Applications for Identity Management & Data Quality
Lisa Schilling, MD, MSPH
University of Colorado Denver
View Video
View PDF
                      
1:50 PM
Privacy Preserving Nonparametric Tests of Differences Between Groups for Comparative Effectiveness Research
Jason Doctor, PhD
University of Southern California
View Video
View PDF
2:10 PM

Scalable Patient and Stakeholder Engagement: pSCANNER Phase I Research Prioritization
Katherine Kim, PhD, MPH, MBA (UC Davis, Betty Irene Moore School of Nursing)
Dmitry Khodyakov, PhD (
RAND Health)

View Video
View PDF

2:35 PM
Break
 
2:55 PM

Collaborations with CTSA Initiatives (UC ReX and ACT)
Douglas Bell, MD, PhD
University of California Los Angeles

View Video
View PDF
3:10 PM pSCANNER Collaborations with Patient-Powered Research Networks
Cleo Maehara, MD
University of California San Diego
View Video
View PDF
3:25 PM
PRIDEnet: Utilizing Technology to Engage Sexual and Gender Minorities in Clinical Research
Mitchell R. Lunn, MD
University of California San Francisco
View Video
View PDF
3:40 PM

CCFA Partners
Sid Singh, MD
University of California San Diego

View Video
View PDF
3:55 PM

Multiple Sclerosis PPRN, iConquerMS
Revere R Kinkel MD, FAAN
University of California San Diego

View Video
View PDF
4:10 PM

Optional Visit of the Division of Biomedical Informatics                                                                   

 

 

6:00 PM Networking Dinner at the Faculty Club                                                                                                              

 

Thursday, October 1 (Day 2)

8:30 AM
Breakfast and Registration
 
 
9:00 AM
Welcome and Overview of iDASH
Lucila Ohno-Machado, MD, PhD
University of California San Diego

View Video
View PDF
 

9:20 AM
Keynote: Data Governance in Large-scale Biomedical Research: Tools, Methods, and Policy Goals
Pilar Ossorio, PhD, JD
University of Wisconsin Law School
View Video
View PDF
10:00 AM
Human Genome Privacy in a Hybrid Cloud (linked R01)
Xiaofeng Wang, PhD
Indiana University

View Video
View PDF

10:15 AM

Break

 
10:30 AM
Leveraging Randomness in Structure to Enable Efficient Distributed Data Analytics
Jaideep Vaidya, PhD
Rutgers University
View Video
View PDF
10:45 AM

Collaborative Research with Tribal Partners: Experience from a Regional Food Security Partnership
Katherine Kim, PhD, MPH, MBA
University of California Davis, Betty Irene Moore School of Nursing

View Video
View PDF
11:05 AM

Engagement for Study Design and Dissemination: Improving Behavioral Health Focused EHR Health Communication with Stakeholders
Kari Stephens, PhD
University of Washington

View Video
View PDF

11:25 AM
IRB Streamlining
Carl Stepnowsky, PhD
VA San Diego Healthcare System 
View Video
View PDF
11:40 AM

Informed Governance: A Framework for Adaptive Information Policy
Mark Elson, PhD and Barbara Filkins
Intrepid Ascent

View Video
View PDF
12:00 PM
Lunch
 
1:00 PM
Keynote: Data from Life’s Unavoidable Events - California’s Birth and Death Registries
Michael Hogarth, MD
University of California Davis

View Video
View PDF                  

1:30 PM SHARE: Statistical Health Information Release with Differential Privacy (Linked R01) and Building Patient-Centered Privacy Preserving Data Registries (PCORI Funded Project)
Li Xiong, PhD
Emory University
View Video
View PDF
1:50 PM

Cloud-Assisted Distributed Private Data Sharing
Xiaoqian Jiang, PhD
University of California San Diego

View Video
View PDF

2:10 PM
Break
 
2:30 PM

Panel: Legal and Ethical Issues in Genome Privacy
Moderator: Shuang Wang, PhD (UCSD)
Pamela Sankar, PhD (University of Pennsylvania)
Cinnamon Bloss, PhD (UCSD)
Camille Nebeker, MS, EdD (UCSD)
Dov Fox, JD (USD)

View Video
View PDF
Nebeker

3:30 PM CYCORE: Cyberinfrastructure for Cancer Comparative Effectiveness Research (Linked R01)
Emilia Farcas, PhD
University of California San Diego
View Video
View PDF
3:45 PM The Cardiac Atlas Project (Linked R01)
Andrew McCulloch, PhD
University of California San Diego
 
4:00 PM Infrastructure to Host Sensitive Data: HIPAA Cloud Storage and Compute
Anthony Koures, PhD, Claudiu Farcas, PhD, and Olivier Harismendy, PhD
University of California San Diego
View Video
View PDF
4:30 PM Day End  

 

Friday, October 2 (Day 3)

8:30 AM
Breakfast and Registration
                     
9:00 AM
Introduction to Driving Biological Projects
Lucila Ohno-Machado, MD, PhD
University of California San Diego
View Video
View PDF
9:10 AM
Privacy Preserving Shared Access to Computing on Sensitive Data: A Feasibility Study (DBP7)
Shuang Wang, PhD

University of California San Diego

View Video
View PDF
9:30 AM
Privacy Preserving Analytics for Kawasaki Disease in African-Americans (DBP4)
Jane Burns, MD and Jihoon Kim
University of California San Diego
View Video
View PDF
9:50 AM
Partnership for Epidemiological Research in Hispanic/Latinos (DBP 5)
Gregory Talavera, MD, MPH

San Diego State University

View Video
View PDF
10:10 AM
Break
 
10:20 AM
informed CONsent for Clinical data and sample Use for Research (iCONCUR)
Hyeoneui Kim, RN, PhD
University of California San Diego
View Video
View PDF
10:40 AM
Informed Consent for Biospecimen Collection and Data Sharing Among Low-income, Uninsured and Underinsured Women: Is it a Matter of Trust? (DBP 6)
Ian Komenaka, MD (Maricopa Medical Center)
Presented by: Elena Martinez, PhD (UC San Diego)
View Video
View PDF
11:00 AM

Keynote: Bringing Big Data to the Bedside
Christopher Longhurst, MD
Stanford Children's Health

View Video
View PDF

11:40 AM Closing Remarks
Lucila Ohno-Machado, MD, PhD
University of California San Diego
View Video
View PDF