Sharing Genomic Data: NIH Data Sharing Policies Past, Present & Future


Fri Apr 15, 2011


Laura Rodriguez
Office of Policy, Communications and Education







One of the key tenets of genomics research is rapid and broad access to basic genomic data.The National Institutes of Health (NIH) is similarly committed to open data sharing practices in order to ensure access to federally-funded data and resources and promote maximum public benefit through the public's biomedical research investment. In this webinar, the principles underlying NIH's genomic data sharing policies will be reviewed and an overview will be provided of the policy model and expectations for protecting the interests of research participants whose data is contained within primary genomic datasets.



Laura Lyman Rodriguez, Ph.D., is the Director for the Office of Policy, Communication, and Education and the Senior Advisor to the Director for Research Policy at the National Human Genome Research Institute (NHGRI), National Institutes of Health (NIH). Dr. Rodriguez works to develop and implement policy for research initiatives at the NHGRI, as well as trans-NIH programs. She is particularly interested in the policy and ethics questions related to the inclusion of human research participants in genomics and genetics research. Among other activities, Dr. Rodriguez has provided leadership for many of the policy development activities pertaining to genomic data sharing and the creation of the database for Genotypes and Phenotypes (dbGaP) at the NIH. Dr. Rodriguez received her bachelor of science with honors in biology from Washington and Lee University in Virginia and earned a doctorate in cell biology from Baylor College of Medicine in Texas.



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