Sharing Genomic Data: NIH Data Sharing Policies Past, Present & Future

Date: 

Fri Apr 15, 2011

Host: 

Laura Rodriguez
Office of Policy, Communications and Education

Category: 

Policy

VIEW RECORDING

DOWNLOAD SLIDES

 

ABSTRACT

One of the key tenets of genomics research is rapid and broad access to basic genomic data.The National Institutes of Health (NIH) is similarly committed to open data sharing practices in order to ensure access to federally-funded data and resources and promote maximum public benefit through the public's biomedical research investment. In this webinar, the principles underlying NIH's genomic data sharing policies will be reviewed and an overview will be provided of the policy model and expectations for protecting the interests of research participants whose data is contained within primary genomic datasets.

 

SPEAKER BIOGRAPHY

Laura Lyman Rodriguez, Ph.D., is the Director for the Office of Policy, Communication, and Education and the Senior Advisor to the Director for Research Policy at the National Human Genome Research Institute (NHGRI), National Institutes of Health (NIH). Dr. Rodriguez works to develop and implement policy for research initiatives at the NHGRI, as well as trans-NIH programs. She is particularly interested in the policy and ethics questions related to the inclusion of human research participants in genomics and genetics research. Among other activities, Dr. Rodriguez has provided leadership for many of the policy development activities pertaining to genomic data sharing and the creation of the database for Genotypes and Phenotypes (dbGaP) at the NIH. Dr. Rodriguez received her bachelor of science with honors in biology from Washington and Lee University in Virginia and earned a doctorate in cell biology from Baylor College of Medicine in Texas.

 

 

IMPORTANT NOTICE: This ReadyTalk service includes a feature that allows audio and any documents and other materials exchanged or viewed during the session to be recorded. By joining this session, you automatically consent to such recordings. If you do not consent to the recording, discuss your concerns with the meeting host prior to the start of the recording or do not join the session. Please note that any such recordings may be subject to discovery in the event of litigation.