Partnership for Epidemiological Research in Hispanic/Latinos: Research Literacy to Consent to Bio-behavioral Longitudinal Research (Special Webinar)


Thu Aug 22, 2013


Sheila Castañeda and Greg Talavera
San Diego State University


Epidemiological Research in Hispanics/Latinos (DBP 5)

Time: 11:00AM Pacific, 2:00PM Eastern.





This project targets participants in the Hispanic Community Health Study (HCHS) / Study of Latinos (SOL) through the San Diego Field Center. HCHS/SOL is a prospective, population-based, cohort study designed to examine risk and protective factors for chronic diseases and to quantify morbidity and mortality in US Hispanics/Latinos (H/L) of diverse backgrounds. This is the largest contemporary cohort study of over 16,000 Hispanic/Latinos (H/L) across four communities in the United States (Bronx, NY, Chicago, IL, Miami, FL, San Diego, CA). In this proposed study, we will focus on overcoming cultural and language barriers and improving participant comprehension of informed consent by examining the consent and biospecimen knowledge, and research literacy among HCHS/SOL participants who participated in the baseline consenting process in 2009-2011. The iDASH partnership will help us address our needs for secure data storage, de-identification, and analysis to better understand issues surrounding informed consent for bio-specimens banking among vulnerable populations. In addition, these data will help inform the scientific literature on research literacy among Hispanic/Latinos residing in the U.S.

In this project we aim to: (1) compare the research literacy among HCHS/SOL participants who did and did not consent to provide biospecimens during the baseline consenting process; and (2) collaborate with UCSD iDASH to establish a robust data repository to enable analysis and synthesis of different forms of biomedical, behavioral, and quantitative data, within the bounds of privacy restrictions according to Federal Information Security Management Act of 2002 (FISMA).



Greg Talavera, MD, MPH, received his MD from the University of Utah’s School of Medicine, completed an internship in Family Practice at Stanford University, and a Preventive Medicine Residency and concurrent MPH program in Health Promotion in the joint UCSD-SDSU Preventive Medicine Program. After practicing ambulatory medicine in the Community Health Centers of San Diego for 14 years he accepted a tenure track faculty position with the Graduate School of Public Health in 1996. He has over 25 years of experience in primary care with the target population and community; and over 23 years of collaboration with staff and investigators at the Institute for Behavioral and Community Health Studies (IBACH). He has served as Medical Director/Co-investigator/PI on many research and service projects since 1991. He has led 14 grants and contracts totaling over $20 million in direct costs. He as published over 50 articles and chapters stemming from these studies, which have provided important contributions on how to reduce Latino health disparities and how to engage the Latino community in the behavior change process. He is serving as the PI for the San Diego Field Center and Chair of the Steering and Career Development Committees for the Hispanic Community Health Study/Study of Latinos (HCHS/SOL), which aims to examine prevalence and risk factors for cardiovascular, diabetes, and other chronic diseases in a multi-site national cohort of 16,000 individuals of Hispanic/Latino background. He is PI for the San Diego site of the multi-site NCI-funded project, Redes en Acción: The National Latino Cancer Research Network and PI/Director for a NIMHD-funded Center of Excellence (COE). Currently he is Professor in the Division of Health Promotion and Behavioral Sciences at the Graduate School of Public Health at San Diego State University (SDSU), and a Senior Core Investigator and Co-Director of the Institute for Behavioral and Community Health (IBACH).

Sheila Castañeda, PhD earned her PhD in Community Psychology from Michigan State University where her graduate training focused on community-based participatory research (CBPR), mixed-methods, evaluation science, and cancer health disparities and risk reduction. Her post-doctoral training focused on cardiovascular epidemiology at SDSU. Her research interests involve addressing health disparities affecting vulnerable populations in relation to preventive services utilization and chronic disease management. She is Principal Investigator on an academic-community partnership study to develop a promotora-based breast cancer literacy intervention targeting Latina community health center patients and Co-Investigator on three NIH-funded Latino epidemiological and chronic disease intervention studies. She is Co-Investigator for the San Diego Field Center of HCHS/SOL and Chair of the HCHS/SOL Community Relations Committee. She is also an Evaluator for the National Alliance for Hispanic Health. Currently, she is a Core Investigator at the Institute for Behavioral and Community Health (IBACH) and Research Assistant Professor in the Division of Health Promotion and Behavioral Sciences, Graduate School of Public Health at San Diego State University.


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