Data Integration, Analysis, and Sharing Symposium

Date: September 15-16
Time: 8AM-5PM; 9AM-3PM
Location: The Sheraton, La Jolla
Surveys: Please let us know how you liked the talks, webstream, dinner, and other parts of the event here.

 

This event is supported by NIH grants, iDASH and CTRI, PCORI funded pSCANNER, and the Division of Biomedical Informatics at UCSD.

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Monday, September 15 (Day 1)

8:00 AM
Breakfast and Registration
 
 
8:30 AM
Welcome and Introduction of Data Sharing Initiatives and the iDASH Center
Lucila Ohno-Machado, MD, PhD
University of California San Diego

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9:00 AM
The Rise of the Data-Centric Research and Publication Enterprises
Susanna Assunta Sansone, PhD
University of Oxford; Honorary Academic Editor of Nature's Publication "Scientific Data"
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9:30 AM
Panel 1: Data Sharing Requirements from the Perspective of Funding Agencies
Heidi Sofia, PhD, MPH (NIH)
Gurvaneet Randhawa, MD, MPH (AHRQ)
Sarah Greene, MPH (PCORI)

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Sofia
Randhawa
Greene

10:10 AM

Break

 
10:30 AM
The VA Informatics and Computing Infrastructure (VINCI) Enterprise Data Warehouse
Jonathan Nebeker, MD
U.S. Department of Veterans Affairs, University of Utah
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10:45 AM
Infrastructure to Host Sensitive Data: HIPAA Cloud Storage and Compute
Antonios Koures, PhD (Clinical and Translational Research Institute)
Claudiu Farcas, PhD (UC San Diego)
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11:00 AM
Cyberinfrastructure for Comparative Effectiveness (linked R01) and DELPHI Project
Kevin Patrick, MD
University of California San Diego

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11:15 AM
Releasing SNP data and GWAS Results with Guaranteed Privacy Protection
Xiaoqian Jiang, PhD and Shuang Wang, PhD
University of California San Diego 
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11:25 AM

Building data registries with privacy and confidentiality
Li Xiong, PhD
Emory University

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11:35 AM
Human Genome Privacy in a Hybrid Cloud (linked R01)
Xiaofeng Wang, PhD
Indiana University
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11:45 AM
Privacy Preserving Analytics for Kawasaki Disease in African-Americans (DBP4)
Jane Burns, MD
University of California San Diego
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11:55 AM

Distributed Computing
Shuang Wang, PhD
University of California San Diego

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12:05 PM
Privacy Preserving Shared Access to Computing on Sensitive Data: A Feasibility Study (DBP7)
Ying Zhang, PhD
University of Oklahoma
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12:15 PM
The Cardiac Atlas Project (linked R01)
Andrew McCulloch, PhD
University of California San Diego
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12:30 PM
Lunch
 
1:15 PM
Ethics Considerations in Sharing Genome Data
Pamela Sankar, PhD
University of Pennsylvania
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1:50 PM
Partnership for Epidemiological Research in Hispanic/Latinos (DBP 5)
Gregory Talavera, MD, MPH
San Diego State University
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2:05 PM
Letting the Patient Decide: informed CONsent for Clinical data and sample Use for Research (iCONCUR)
Hyeoneui Kim, RN, PhD
University of California San Diego

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2:20 PM
Opportunities to Improve the Quality of Patient Care and Research Using the Electronic Health Record: Perspective from an HIV Healthcare Provider
Amy Sitapati, MD
Owen Clinic, School of Medicine, University of California San Diego
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2:35 PM
Informed Consent for Biospecimen Collection and Data Sharing Among Low-income, Uninsured and Underinsured Women: Is it a Matter of Trust? (DBP 6)
Elena Martinez, PhD
University of California San Diego
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2:50 PM
Panel 2: Informed Consent for Biosamples
Moderator: Katherine Kim, PhD, MPH (UC Davis)
Alma Daneshi (Cancer Center Access Partnership)
Rebeca Espinoza
, MPH, MA (San Diego State University)
Richard Schwab, MD (UC San Diego)
Lisa Madlensky, PhD (UC San Diego)
Kristen Wells, PhD, MPH (San Diego State University)
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3:30 PM
Break
 
3:50 PM

Panel 3: Making Human Subjects Data Discoverable
Moderator: Maryann Martone, PhD (UCSD)
George Alter, PhD (University of Michigan)
Hua Xu, PhD (University of Texas)
Kari Stephens, PhD (University of Washington)

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Martone
Alter
Xu
Stephens

4:30 PM Training the Next Generation  and Building a Data Sharing Ecosystem
Lucila Ohno-Machado, MD, PhD
University of California San Diego
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4:45 PM

Optional Visit of the Division of Biomedical Informatics                                                                   

 

 

6:00 PM Dinner and Division of Biomedical Informatics 5th Anniversary Party at the Sheraton               

 

Tuesday, September 16 (Day 2)

9:00 AM
Breakfast and Registration
                     
9:30 AM
Introduction to Clinical Data Networks and pSCANNER (patient-centered SCAlable National Network for Effectiveness Research)
Lucila Ohno-Machado, MD, PhD
University of California San Diego
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10:00 AM
Big Data To Knowledge and Potential Funding Agency Synergies
Jennie Larkin, PhD
National Institutes of Health
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10:30 AM
UC Research eXchange: Connecting the University of California Medical Centers
Douglas Bell, MD, PhD
University of California Los Angeles
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10:45 AM
Technical Implementation of Distributed Networks
Daniella Meeker, PhD
University of Southern California; RAND Corporation
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11:15 AM
VA and Distributed Analytics for Statistical Process Control and Other Statistical Methods
Michael Matheny, MD, MPH
Vanderbilt University
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11:30 AM
Panel 4: Data Harmonization  and Synergies: OMOP, PCORnet CDM and the CTSA cohort identification models
Davera Gabriel, RN (UC Davis)
Daniella Meeker, PhD (RAND)
Douglas Bell, MD, PhD (UC Los Angeles)
Michael Matheny, MD, MPH (Vanderbilt University)
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12:15 PM
Lunch
 
1:00 PM
Connecting Safety Net Clinics Across the Country for Comparative Effectiveness Research

Jennifer DeVoe, MD, PhD

Oregon Health Sciences University
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1:30 PM
Studies Powered by SCANNER Technology
Jason Doctor, PhD
University of Southern California
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1:45 PM

Regulatory Issues and IRB Strategies to Connect UC-ReX, VA, and USC-led clinics
Doug Berman, SM (UC San Francisco)
Dena Rifkin, MD, MS (VA San Diego)
Jason Doctor, PhD (University of Southern California)

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2:00 PM
The Central Role of Patients and Stakeholders in Governance and Research Prioritization
Katherine Kim, PhD, MPH
Nursing, University of California Davis

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2:15 PM Collaborations with Patient-Powered Research Networks
Kyle Brown and Jud Rhode
Patient Crossroads
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2:30 PM Structuring EHR Data Using Natural Language Processing
Chun-Nan Hsu, PhD (UCSD)
Scott DuVall, PhD (University of Utah)

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Hsu
DuVall

2:45 PM Closing Remarks
Lucila Ohno-Machado, MD, PhD
Division of Biomedical Informatics, University of California San Diego
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