Center for Democracy & Technology
The creation of a learning health care system requires that health information be available for secondary uses such as research and public health. Often data that has been "de-identified" by HIPAA standards is sought and used for these purposes. But is the current HIPAA de-identification standard sufficiently robust to protect data from re-identification? And is de-identified data sufficiently useful for secondary purposes? In this webinar we will discuss the controversy surrounding de-identified data and consider policy options for promoting appropriate secondary data use while protecting individual privacy.
Deven McGraw is the Director of the Health Privacy Project at the Center for Democracy & Technology (CDT), where she promotes policies that protect individual privacy as personal health information is shared electronically. Ms. McGraw serves on the Health Information Technology (HIT) Policy Committee and co-chairs its Privacy and Security Workgroup. She is a magna cum laude graduate of the Georgetown University Law Center and received her Master of Public Health from Johns Hopkins University.
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